So.... biopsy (fyi don't read if medical issues upset you)

I'm going to stick with all the pt and speech therapy that I already have and just continue to be careful eating. I really can't do more in office therapy. I'll just have to karaoke with my daughter more. Also, part of the problem is that my neck is curving the wrong direction. The vertebrae are actually changing shape to compensate. They don't even want to send me to pt for that. "Do yoga" Is all they'll say. Yoga is useless without a teacher to make sure I'm in the correct position. Especially since ballet is such an integral part of the way I move and stand. But I not only can't afford the yoga classes, my Evelyn's just supposed to stay home alone during them? Not an option. My mother is willing to watch my nephew 3 days a week 9 hours a day. 1 1/2 for Evelyn is too much for her to be comfortable committing too. Then she wonders why Evelyn feels like her only grandma doesn't love her. I need to go cry now.
 
Tak said:
I'm going to stick with all the pt and speech therapy that I already have and just continue to be careful eating. I really can't do more in office therapy. I'll just have to karaoke with my daughter more. Also, part of the problem is that my neck is curving the wrong direction. The vertebrae are actually changing shape to compensate. They don't even want to send me to pt for that. "Do yoga" Is all they'll say. Yoga is useless without a teacher to make sure I'm in the correct position. Especially since ballet is such an integral part of the way I move and stand. But I not only can't afford the yoga classes, my Evelyn's just supposed to stay home alone during them? Not an option. My mother is willing to watch my nephew 3 days a week 9 hours a day. 1 1/2 for Evelyn is too much for her to be comfortable committing too. Then she wonders why Evelyn feels like her only grandma doesn't love her. I need to go cry now.
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:xmashug::xmashug::xmashug::xmashug::xmashug::xmashug::xmashug::xmashug::xmashug::xmashug::xmashug::xmashug:
 
Yeah... eventually my cervical (neck) vertebra will be unable to support my head and will cut off circulation to my brain, or the change in shape will slowly restrict the blood flow to my brain and the nerve will be pinched. It could make me paralyzed from the neck down, or kill me. Meh. What happens, happens.
 
Tak said:
Yeah... eventually my cervical (neck) vertebra will be unable to support my head and will cut off circulation to my brain, or the change in shape will slowly restrict the blood flow to my brain and the nerve will be pinched. It could make me paralyzed from the neck down, or kill me. Meh. What happens, happens.
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Yea girlie that is what I am dealing with. I was wondering the other day if my head will just like fall over and then that will be it or what? I have had this fear that I would drop to the floor and not be able to breath and die a terrible death alone. Then R2 would come home and find me on the floor. Yikes I would rather just fall sleep and go that way. The uncertainty of nerve damage really is scary isn't it? Just so long as I can be at home, I don't ever want to be anywhere but home. Sorry to be so morbid, its just stuff I think about all of the time. R2 and I talk about it a lot. I am trying to not think about it because, my prayer is I will be healed. So, I am going for that in that is my hope. So, maybe a bright star will show up and I will float up in the air. Get fixed and then walllaaaa a new person!!
 
tulagirl said:
Yea girlie that is what I am dealing with. I was wondering the other day if my head will just like fall over and then that will be it or what? I have had this fear that I would drop to the floor and not be able to breath and die a terrible death alone. Then R2 would come home and find me on the floor. Yikes I would rather just fall sleep and go that way. The uncertainty of nerve damage really is scary isn't it? Just so long as I can be at home, I don't ever want to be anywhere but home. Sorry to be so morbid, its just stuff I think about all of the time. R2 and I talk about it a lot. I am trying to not think about it because, my prayer is I will be healed. So, I am going for that in that is my hope. So, maybe a bright star will show up and I will float up in the air. Get fixed and then walllaaaa a new person!!
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You pretty much said it the same way I would. We even have an emergency plan. If anything happens to me, Evelyn calls her grandparents first so she'll be safe. Only then can she call 911.

Also, the pups will always have our backs. They would be right there with puppy kisses and snuggles, no matter what's happening.
 
That is a good idea to have an emergency plan. Do you have everything written out? I was thinking about writing everything out so R2 wouldn't have to think about everything that was going on with me. Kind of like the All About Tula pamphlet lol.
 
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tulagirl said:
That is a good idea to have an emergency plan. Do you have everything written out? I was thinking about writing everything out so R2 wouldn't have to think about everything that was going on with me. Kind of like the All About Tula pamphlet lol.
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Yes. Although she knows it well. We've always had my mom and dad on speed dial and she can even text them from her iPad.
 
Tak said:
Yes. Although she knows it well. We've always had my mom and dad on speed dial and she can even text them from her iPad.
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Oh actually I meant like diagnosis, doctors names, medications, current tests and results that sort of thing.
 
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Oh, we have all that clearly listed and readily available, too. In with the paper form of emergency numbers, allergies, and action plan.
 
You two are seriously so brave and if I lived closer I'd totally volunteer to help you with stuff. I wish for a miraculous recovery for both of you someday.
 
I d help too I am sorry all of the bad stuff happens to certain people. I wish I was like m Dollfies I don't like the body I take my head and put it on a new body problem solved. If only.
 
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It really is too bad we aren't all closer. We could have a little commune and help look after each other, then play with Ponies.
 
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evilbunnyfoofoo said:
It really is too bad we aren't all closer. We could have a little commune and help look after each other, then play with Ponies.
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That would be pretty awesome.
 
Ology said:
I d help too I am sorry all of the bad stuff happens to certain people. I wish I was like m Dollfies I don't like the body I take my head and put it on a new body problem solved. If only.
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There's an obscure song out there I think it's nineties. Called "detachable pen*s* I always thought it would be nice to have a full body transplant. (I read jack the bodiless too many times) I got to really thinking, though, and if they're replacing dysfunctional parts, they'd just call me a lost cause. So I'll stick with the body I'm in. Depo provera puts me in menopause so no female issues. The rest is just pain. Eh. It's been almost 20 years of constant pain, what's a little more gonna do? Although, after taking care of my front yard, each day my arm was useless after, so I really do need to find a way to at least increase the tolerance of my shoulder. My front yard is tiny and it took three days! My backyard will take a week! (Oh no, just realized I'd have to start the cycle all over again to keep up! :eek:) Don't like the hamster wheel.
 
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